Saturday, February 26, 2011
Thursday, February 17, 2011
~~My family is SO not perfect, BUT, I am SO in love with them~~
The tickets were bought(thanks Erick) everything is coming together for DENVER. It would be better if the Ronald McDonald house took reservations, but hey....FAITH, right? So I do ask everyone reading this....please think about the 13th or March, send GOOD WARM vibes to the RONALD MAC house that it will be EMPTY!
Its crazy to think this day is almost here. It cant come fast enough...well, maybe it can...becuase packing for three weeks and on a budget...uhm, yeah. My thoughts are to send a box either to the hospital or the RMH...with some comforting things. Aubrey has already told me that she needs to take her blanket...yeah queen size pink fuz...but I guess if it is something that brings comfort to her...then she will need it! Thank goodness for my blackberry, I will be living on it I am sure!
~~The sun is shining today....so pretty:) although I must admit, I am so tired of this white stuff they call snow. I am not sure I want to say that too loud...being as I live in MONTANA. It is fun to watch the kids get excited about sledding and snow ball fights, but I am excited for summer!
Madie has been so sick> I want to say today is day number 12. Her strep throat, influenza, croup and RSV tests all came back positive. Yep, the girl has been nailed by the sick bugs....today we just added a second antibiotics, the big guns are out:) lets get better. My nights and days are all running together. I am tired and afraid a little cranky.
So again, March 14Th is surgery. We are to be at the hospital at 630, surgery is at 830... here is where I will keep track of EVERYTHING. Pictures and videos:)
Tuesday, February 15, 2011
Good Morning blog readers!
Well I sit here this morning taking a few to take into my head and heart some feelings....WOW, not long and we will be in DENVER!
There is a girl on face book who I recently have become friends with...She is a 35 year old adult....beautiful adult. Of course I looked at all her wedding pictures...go straight to her ear to see if her aids were noticeable...isn't that was we all do? ha ha, well this mother has those things on her mind, I guess it seems normal to me. Anyway, her implant was turned on the 24Th of January. She shares a video of activation day...WOW, I have watched it 7 times, and I cry harder each time! I hear her voice, which seems to be great...then I think of Aubrey...will she have this reaction? will it be this moving for her?
I must be honest and also share that i think back to ALL the audiologists we have had....I want to tell them all and i mean ALL how and where we are today is NOT because of ANYTHING they have done. I think back to ALL and I mean all...Audie's and speech therapists and I think....why? I think...in your face! I think...wow, I feel so sorry for those who are still in with them. Especially our first Audiologist. I wasted 10 years with that woman, she did nothing but make me feel like a bad parent. Like I was wrong for going to family learning weekends with Aubrey in Greatfalls at the school for the deaf and blind. I never had a true understanding of Aubrey's hearing loss...I had to beg for information...I was at this woman's mercy for all the wrong reasons. Skip a few...move on to the last audiologist we had in Missoula. I thought he was amazing. He had hard of hearing daughter, i thought...OKAY this man understands and truly knows this road. Well for about a year he was great! Then when i got more "in your face"...her hearing was changing almost weekly, his attitude changed. I personally wonder how much it has to do with him working THE doctor in the state of Montana who does cochlear implant surgeries. This doctor mind you REFUSED to implant Aubrey. He actually called me the night before we left for Denver and let me know how he felt! yeah...like I cared, He had made it sound as if he had been apart of our "team" for years...when in fact i had only seen him 3 times in Aubrey's 13 years of life!
~Sorry, getting wrapped up in my thoughts.....what is the most important thing here? that is I can honestly say, looking back, we have done nothing but advocate for our kids, and I will never apologize for asking questions or second guessing ANYONE. as a parent we are suppose to do everything for our kids, everything! Even if that means get a 5Th opinion!
Well I sit here this morning taking a few to take into my head and heart some feelings....WOW, not long and we will be in DENVER!
There is a girl on face book who I recently have become friends with...She is a 35 year old adult....beautiful adult. Of course I looked at all her wedding pictures...go straight to her ear to see if her aids were noticeable...isn't that was we all do? ha ha, well this mother has those things on her mind, I guess it seems normal to me. Anyway, her implant was turned on the 24Th of January. She shares a video of activation day...WOW, I have watched it 7 times, and I cry harder each time! I hear her voice, which seems to be great...then I think of Aubrey...will she have this reaction? will it be this moving for her?
I must be honest and also share that i think back to ALL the audiologists we have had....I want to tell them all and i mean ALL how and where we are today is NOT because of ANYTHING they have done. I think back to ALL and I mean all...Audie's and speech therapists and I think....why? I think...in your face! I think...wow, I feel so sorry for those who are still in with them. Especially our first Audiologist. I wasted 10 years with that woman, she did nothing but make me feel like a bad parent. Like I was wrong for going to family learning weekends with Aubrey in Greatfalls at the school for the deaf and blind. I never had a true understanding of Aubrey's hearing loss...I had to beg for information...I was at this woman's mercy for all the wrong reasons. Skip a few...move on to the last audiologist we had in Missoula. I thought he was amazing. He had hard of hearing daughter, i thought...OKAY this man understands and truly knows this road. Well for about a year he was great! Then when i got more "in your face"...her hearing was changing almost weekly, his attitude changed. I personally wonder how much it has to do with him working THE doctor in the state of Montana who does cochlear implant surgeries. This doctor mind you REFUSED to implant Aubrey. He actually called me the night before we left for Denver and let me know how he felt! yeah...like I cared, He had made it sound as if he had been apart of our "team" for years...when in fact i had only seen him 3 times in Aubrey's 13 years of life!
~Sorry, getting wrapped up in my thoughts.....what is the most important thing here? that is I can honestly say, looking back, we have done nothing but advocate for our kids, and I will never apologize for asking questions or second guessing ANYONE. as a parent we are suppose to do everything for our kids, everything! Even if that means get a 5Th opinion!
Thursday, February 10, 2011
March 14th is OUR big day~ Surgery is at 830 we check into the hospital at 630AM. We will stay in Denver for 2-3 weeks. The plan is to implant Aubrey, let the incision heal....at the end of the two weeks activate her implant and see the audiologist two times before leaving, heading back to Montana. Then we will go back within 4-6 weeks. That is when they (audilogist) can do some fine tuning and tweaking to the CI...Aubrey is going to be able to really give us positive feedback, what she is and isn't hearing.....this day is so close but yet so far away! I am so nervous, excited and terrified in so many ways! I can only imagine what Aubrey feels :) I promise to blog daily...to share our journey with you all.
Wednesday, February 2, 2011
╔════════════ ೋღ☃ღೋ ════════════╗
☼ How lucky am I to have amazing kids ☼
╚════════════ ೋღ☃ღೋ ════════════╝
~~Well, yesterday I got a call from Lewis and Clark (Madie's School) saying "Allie, not sure if this is good news or bad...but someone found the LOST hearing aid" HOLY BANANA'S, really? it was found? WOW, never in the 13 years I have been dealing with hearing aids has one appeared without a "finders prize" wow, THANK YOU to whoever found the long lost purple hearing aid. So we are now the proud owners of TWO hearing aids for Madie...so if by chance we lose that aid AGAIN (SHH don't even think it) we will have a back up!
~~On another note, I still have yet to hear from Children's Hospital, about scheduling for this CI surgery. Ugh, does not everyone know I have the patience of a 3 month old child? this is killing me. I did get in my fortune cookie yesterday that "this months travels will bring you much happiness" YES IT WILL, so I am going to continue to hope that they HURRY IT UP and call me!
~~Aubrey has really gotten into Volleyball, she is such a natural, she is NOT afraid of the ball..she is aggressive and really tries to do her best! I so enjoy going to her games and cheering her on! This Saturday is pictures...yeah my wall will get a new picture! also next week are spring pictures for both girls at school...YEAH:)
~~The move is done! I said DONE...all that is left is unpacking and putting things where they need to be. But let me say, I love my house! the other day when the cable guys left, i walked upstairs and thought...geesh those guys left a light on...and NOPE, it was the sunset peaking in ALL the windows. Wow it is so bright and cheery here! I am so happy to be done with MOLDY HOUSE!
☼ How lucky am I to have amazing kids ☼
╚════════════ ೋღ☃ღೋ ════════════╝
~~Well, yesterday I got a call from Lewis and Clark (Madie's School) saying "Allie, not sure if this is good news or bad...but someone found the LOST hearing aid" HOLY BANANA'S, really? it was found? WOW, never in the 13 years I have been dealing with hearing aids has one appeared without a "finders prize" wow, THANK YOU to whoever found the long lost purple hearing aid. So we are now the proud owners of TWO hearing aids for Madie...so if by chance we lose that aid AGAIN (SHH don't even think it) we will have a back up!
~~On another note, I still have yet to hear from Children's Hospital, about scheduling for this CI surgery. Ugh, does not everyone know I have the patience of a 3 month old child? this is killing me. I did get in my fortune cookie yesterday that "this months travels will bring you much happiness" YES IT WILL, so I am going to continue to hope that they HURRY IT UP and call me!
~~Aubrey has really gotten into Volleyball, she is such a natural, she is NOT afraid of the ball..she is aggressive and really tries to do her best! I so enjoy going to her games and cheering her on! This Saturday is pictures...yeah my wall will get a new picture! also next week are spring pictures for both girls at school...YEAH:)
~~The move is done! I said DONE...all that is left is unpacking and putting things where they need to be. But let me say, I love my house! the other day when the cable guys left, i walked upstairs and thought...geesh those guys left a light on...and NOPE, it was the sunset peaking in ALL the windows. Wow it is so bright and cheery here! I am so happy to be done with MOLDY HOUSE!
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