~~Life has been busy~~
Where to even begin and make sure everyone is filled in, i do better at always sharing at face book so if anyone wants to request that would be great too! But i need to be better here, because we are a team and if anything i say is even a fraction of what someone else is dealing with...or has dealt with...we are a team and we are walking the same path!
Frank, Aubrey and I headed to Denver last month. It was time for a better opinion then Montana could give us. As a parent it is my job to go to any end to get answers....to ask anyone and don't fret over the toes I am stepping on. The point is I am not intending to make people mad...but to get the BEST for my daughters!
Our purpose in Denver was to go through the cochlear implant clinic to see if Aubrey met guideline...was a candidate for the implant. Knowing that a Dr. THE doctor in Montana was NOT willing to implant Aubrey...why? good question, I am dying to know too. Anyhow, long long story and trip, so emotional...but SO WORTH it! the bottom line is AubZ is a 100% candidate for the right ear and a borderline for her left! how awesome is this...our door has been opened. We got the golden ticket:) we even scheduled for surgery JAN24th 2011! her right ear will have a CI!!
We came back to Montana and assumed that all would be awesome...we would be in Denver for two weeks and that would be that. Well, the first roadblock was the insurance company. Both girls have state insurance. When I called I was asked how i knew they would cover this 30 thousand dollar implant surgery? ughhh, really? reason being the two states have different criteria. So I have written a letter of appeal and am praying to the good lord that we will be fine! In the mean time we have opened a account for her at a bank....we are doing fundraising....there are things that insurance does not cover....and if need be this implant might not be covered! YIKES... I have been looking for a job...and boy, am doing everything extra I can. How frustrating. The second road block we have encountered is Advanced Bionics has recalled their CI....What does this mean. Well Advanced Bionics is the brand we have chosen for Aubrey....there are three different ones, but AB is truly the top of the line! there were 2 people out of 228 thousand that experienced a sensation that was pain 8 to 10 days after surgery. so they voluntary recalled ALL implants and are working with the FDA to figure out what exactly has gone on. Some would sit back and wonder why on earth i would not be worried about that, well i will tell you why. It was a voluntary thing, they obviously care for their patients. Those numbers are WOW...that tells me every thing will be OK. Also in our trip to Denver Advanced Bionics got me in touch with a mentor...a mom who has gone though this with her boy...she can relate and offer herself. Dionne was a blessing. She stayed with us all day...was a shoulder for us to lean on, someone to ask the questions that were important but i was to emotional to even think of....her family was AWESOME!! Since we have been back I have gotten a few emails from the company checking in on us and what stage of the road we were in....that company stands out to me!
All in all... we are finding that we are so grateful to Denver, they proved to us that the most important thing to them~~was doing whatever it took for their patient to hear. Whether it be a new hearing aide or a cochlear implant...they just want that patient to hear! thank you Denver....thank you
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